Involvement of patients in the clinical practice guideline for low vision
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Abstract
Objective: As part of the development of a clinical practice guideline (CPG) for the care of individuals with low vision in Colombia, it is recommended to include patient involvement. The objective was to identify aspects of daily life most affected by low vision, which should be addressed in a vision rehabilitation process, and to recognize barriers to accessing that process. Additionally, the aim was to assess the importance of outcomes for patients and their caregivers.
Methodology: Patients with low vision and their family members were invited to participate in a focus group that explored their perceptions regarding the most affected aspects of low vision, the key elements of vision rehabilitation processes, and the most common barriers they face.
Results: Difficulties were reported in performing instrumental activities such as computer or cellphone use, using public transportation, handling money, shopping, mobility, and orientation. Successful vision rehabilitation was defined as the ability to recover independence and gain self-confidence. Rehabilitation interventions that improve orientation and mobility skills, include psychological support for patients and their families, and incorporate group approaches were highly valued. Administrative barriers were the most frequently mentioned.
Conclusion: These results supported the decision-making process in the development of recommendations for the CPG for individuals with low vision in Colombia.
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References
Ministerio de Salud y Protección Social. Resolución No. 00583 de 26 de febrero de 2018. Disponible en: https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RIDE/DE/DIJ/Resolucion-583-de-2018.pdf
Bourne RRA, Flaxman SR, Braithwaite T. Magnitude, temporal trends, and projections of the global prevalence of blindness and distance and near vision impairment: A systematic review and meta-analysis. Lancet Glob Health. 2017;5:e888–97.
International Classification of Diseases (ICD) [Internet]. World Health Organization. Available at: https://www.who.int/standards/classifications/classification-of-diseases
GBD 2019 Blindness and Vision Impairment Collaborators, Vision Loss Expert Group of the Global Burden of Disease Study. Trends in prevalence of blindness and distance and near vision impairment over 30 years: An analysis for the Global Burden of Disease Study. Lancet Glob Health. 2021;9:e130–43.
Steinmetz JD, Bourne RRA, Briant PS. Causes of blindness and vision impairment in 2020 and trends over 30 years, and prevalence of avoidable blindness in relation to VISION 2020: the Right to Sight: An analysis for the Global Burden of Disease Study. Lancet Glob Health. 2021;9:e144–60.
Los ciegos en el Censo 2018 [Internet]. Colombia: Instituto Nacional para Ciegos; 2020. Disponible en: https://www.inci.gov.co/blog/los-ciegos-en-el-censo-2018
Organización Mundial de la Salud. Informe mundial sobre la visión [World report on vision]. Ginebra: Organización Mundial de la Salud; 2019.
Instituto Nacional para Ciegos. Plan Estratégico Instituto Nacional para ciegos INCI 2015–2018 [Internet]. Colombia; 2015. Disponible en: http://www.inci.gov.co/transparencia/plan-estrategico
Oviedo-Cáceres M, Hernández-Padilla M, Ruiz-Rodriguez M. Capacidad instalada de centros de atención en baja visión en colombia. Ustasalud Optom. 2012;12:21–30.
Oviedo, MP, Hernández, M, Ruíz RM. Baja visión en Colombia: una situación invisible para el país. Rev Fac Nac Salud Pública. 2015;33:22–30.
Hernández ML, Oviedo-Cáceres MP, Ruiz M. Organization and management network for health care in low vision in Colombia. Investig Andina. 2014;16:1100–17.
Oviedo-Cáceres M, Lugo L, Suárez-Escudero J. Guía de Práctica Clínica para el diagnóstico y tratamiento de rehabilitación de las personas mayores de 7 años con baja visión. 2019.
Carrasquilla G, Pulido A, De la Hoz A. Guía metodológica para la elaboración de guías de práctica clínica con evaluación económica en el Sistema General de Seguridad Social en Salud Colombiano. Colombia; 2014. Disponible en: http://gpc.minsalud.gov.co/recursos/Documentos%20compartidos/Guia_Metodologica_Web.pdf
Lamontagne M, Gagnon M, Perreault K. Evaluating the acceptability, feasibility, and outcomes of two methods involving patients with disability in developing clinical guidelines: Crossover pilot study. J Particip Med. 2021;13:e24319.
Martínez-Salgado C. El muestreo en investigación cualitativa. Principios básicos y algunas controversias. 2012;7:613-19.
Kitzinger J. The methodology of focus groups: The importance of interaction between research participants. Sociol Health Illn. 1994;16:103–21.
Guyatt GH, Oxman AD, Sultan S. GRADE guidelines: 9. Rating up the quality of evidence. J Clin Epidemiol. 2011;64:1311–6.
Lamoureux EL, Hassell JB, Keeffe JE. The impact of diabetic retinopathy on participation in daily living. Arch Ophthalmol. 2004;122:84–8.
Brouwer DM, Sadlo G, Winding K. Limitations in mobility: Experiences of visually impaired older people. Br J Occup Ther. 2008;71:414–21.
Crudden A, Cmar JL, McDonnall MC. Stress associated with transportation: A survey of persons with visual impairments. J Vis Impair Blind. 2017;111:219–30.
Swenor BK. A Gerontological perspective on visual impairment and mobility. JAMA Ophthalmol. 2016;134:1093–4.
van Leeuwen LM, Rainey L, Kef S. Investigating rehabilitation needs of visually impaired young adults according to the International Classification of Functioning, Disability and Health. Acta Ophthalmol (Copenh). 2015;93:642–50.
Macnaughton J, Latham K, Vianya-Estopa M. Rehabilitation needs and activity limitations of adults with a visual impairment entering a low vision rehabilitation service in England. Ophthalmic Physiol Opt. 2019;39:113–26.
Rees G, Saw CL, Lamoureux EL. Self-management programs for adults with low vision: Needs and challenges. Patient Educ Couns. 2007;69:39–46.
Brody BL, Gamst AC, Williams RA. Depression, visual acuity, comorbidity, and disability associated with age-related macular degeneration. Ophthalmology. 2001;108:1893–900.
Giloyan A, Harutyunyan T, Petrosyan V. Visual impairment and depression among socially vulnerable older adults in Armenia. Aging Ment Health. 2015;19:175–81.
Oviedo M. Barreras para acceder a los servicios de rehabilitación de la baja visión: Una revisión de tema. UstaSalud. 2019;18:48-54.